So a girl always has two men in her life, well if you're me you do. I couldn't have asked for a better husband or a better father. Unfortunately, as time goes on and each day passes, one of those men is hurting more and more. I will save myself some time and simply post on here the email update I sent out to some friends although probably anyone that reads this got that email anyway. So, here is the latest and please continue to pray! I love this man too much to be ready to let him go just yet! He's got some work yet to do here on Earth. But it's all in God's hands.
Hello everyone. It's been a while since I've sent an update on my dad and I wanted to let you all know the latest. He had an appointment this past Monday at the Mayo Clinic and they are very concerned with his test results. I don't know what all the numbers mean and such since there are always so many numbers and tests, but I just know that he went from being at the bottom of the list the last time he was on the active list (another story for another day), to being in the top 1/3 at least b/c of how bad his results were. He is on oxygen 100% of his day now (2 liters/min for @ rest, 8-10 liters/min walking and 15 liters/min while exercising, b/c they still want him to continue to be healthy while waiting). Being on the oxygen is a tough thing for him b/c I'm sure it feels like a burden and while he was not surprised by the test results b/c of how he has felt the past few months, the decline he's had in a mere 3 months is incredibly drastic and if he continues to decline at the same rate, he's been given 6 months. Even as I write that it's tough. One of my friends today asked me how I felt about it all. I have very mixed emotions I'll be honest. From anger, to frustration, to sadness and hope. No one would want to be in my head right now let's just leave it at that. They'd never be able to find their way around :) Honestly I'm really writing this email to simply ask for prayer. There is nothing more that can be done right now as we wait. I talked with a friend the other night and it's tough to say, but I found myself thinking how I wanted to start praying for the family of the donor b/c their loss will be my gain, but my dad needed a transplant like yesterday. He has decided that if in 4 months they have not received a call, they will look at moving to Jacksonville to live closer to the Mayo Clinic in hopes that something will come up sooner rather than later. Kylie will be well taken care of and will stay in South Florida and will be surrounded by friends and family who will help her through this journey. She's one tough cookie! I will be traveling home next week sometime simply b/c I feel it's something I may never get to do again and while it breaks my heart, I will not take the girls. Eric is going to stay here with them and keep Nichole in school and them on their routine. It's imperative that my dad not get sick, so bringing the kids in, even though neither one of them is sick at the moment, could only lead to disaster. As of Friday my dad will officially be on the active list and will wait for the call. We have been overwhelmed with the support he has received in working out transportation for him to get to the Mayo Clinic at a moment's notice. He told me tonight that they have like 9 airplanes and 2 helicopters at their disposal and if airports are closed for some weather reason, they have back up plans. It's amazing how detailed of a plan they (with the help of my dad's best friend) have printed out for everyone involved. Again, I know there isn't much anyone can say at this point to make any of it better. Even though I struggle daily with how God is handling this or allowing it to play out, I know he's in control and he knows why it's all happening.
Ok, well sorry for all the rambling, I have a feeling this email is completely jumbled, but like I said, it's just a taste of what's going through my mind. I am asking that you please just continue to pray for my dad as he goes through this step in the journey and for the doctors that will be performing the transplant hopefully in the very near future. The running joke is that we hope to spend Thanksgiving in Jacksonville. Not that I want to spend my 30th birthday sitting bedside in a hospital, I'll take the gift of having my dad around for another few years versus the alternative any day.
Thank you all in advance for your continued support and prayer.
Christy
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